About SAPHO Syndrome

A place of discussion for people with the rare autoimmune condition SAPHO Syndrome. As summarized by the National Institute of Health, SAPHO Syndrome is characterized as involving "... any combination of: Synovitis (inflammation of the joints), Acne, Pustulosis (thick yellow blisters containing pus) often on the palms and soles, Hyperostosis (increase in bone substance) and Osteitis (inflammation of the bones). The cause of SAPHO syndrome is unknown and treatment is focused on managing symptoms." If you think you may have SAPHO feel free to look at our members discussions and sign up and ask questions in the Introductions and Personal Stories Section! You can find out more information from the NIH at this link: https://rarediseases.info.nih.gov/diseases/7606/sapho-syndrome. And to reach us on Facebook, visit us at: https://www.facebook.com/groups/568229233315034